Some stories don’t have a clear beginning, middle, and end.
Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what’s
going to happen next.
Delicious ambiguity….
-gilda radner
April
21, 2008
I am often reminded of the great quote by Gilda and the
uncertainty of life. I am certain today that my luck and health is continuing to improve.
Tim
and I returned from Houston late last week after another successful trip. I was given every test known
to man kind, and they all came back clear. Once again, I am thrilled to be where I am today.
I will return to Houston around mid August for another follow-up and to also have a minor surgery performed to correct
my nasal passages. Scar tissue has formed in my nose from the radiation and it is not allowing me to breathe.
I was given the green light on this surgery by my oncologist and I’m thrilled to think I will be breathing again
soon. A good problem to have!
Once
again, thank you for your prayers and calls.
My prayers
are also with Blake (Kathy’s husband) as he continues this ugly fight against cancer. Love, Chris
January 24, 2008
Over
the finish line!
Well, Tim gave you the details on a successful
trip to MDACC last week. I was fortunate to have my friend Barbie go with me as Tim was out with pnenoma. Barbie kept things
light as we laughed our way through Houston. Tim is still fighting the pnenoma and I’m hoping will feel better soon.
It’s been going on over 5 weeks now.
As Tim said my tests came back clean and
this took a huge weight off my shoulders. I also was told I am not a candidate for the vaccination because
I didn’t have surgery on my nose. Well, that was a happy choice I didn’t have to make for myself.
I had worried about the vaccination treatment and that I don’t have the stamina to take it on for a 2 year stint at
this point.
So my course of treatment will be to religiously
have Pet Scans every 3 months for a couple years then time will allow me to space in out in 6 month intervals and so on.
My next visit to MDACC will include a possible day surgery so I can breathe better.
I
want to again thank family and friends for their endless support. I don’t know how someone
in my situation would survive without the support I received. Your notes, cards and calls have strengthened
my soul to no end. To everyone that has stepped up to help me, I hope that
I can repay someday with the kindness and love you’ve shown me.
Thanks
to Tim for standing by me through this mess. If it wasn’t for him, I know I wouldn’t have received the standard
of care I’ve got and might not have crossed the finish line! Thanks to my sister for endless trips
to Denver along with Denise (Missy). You both dropped everything in your lives to accommodate helping me
at a moments notice. I can’t count the number of times they’ve visited Denver this year.
Thanks
also to Erin and Barbie for helping me for a weeks jaunt in the hospital and traveling to Houston.
I
can’t forget my little man who has weathered this storm like a champ. Devin’s sweet spirit
and soul has brought me hope in a time that was filled with chaos.
In closing,
I am a lucky girl. I have been blessed with incredible family and friends. (Blessed that my parents moved
to Denver in a time I really needed them.) Thanks again to Missy for providing this outlet of support
via web site. I had asked Missy to close down this site a few months ago. She insisted
we waited until this trip to MDACC was completed. What a gift she gave me to correspond with everyone through
such a hard process. Thanks again Missy.
It’s
nice to sign off on a positive note. It's bittersweet signing off and brings tears to my eyes. What
a year it has been.
To all of my family and friends, I love you and thank you
from the bottom of my heart. I will be indebted forever.
To
my other friends and family fighting their own health issues, hang in there and my prayers are with you.
With
lots of love and great hope 2008. Chris
January 20, 2008
Wanted to let you all know Chris had her follow up at MD Anderson last week and all is
clear. Our good friend Barbie went with her due to me having a little bout with pneumonia. Chris was in good hands with
our good friend. The Dr's at MDACC took many images to include CT/MRI's and happy to report no signs of
cancer. We will also meet with our CU Dr this week for our NASA redundancy process. But we expect the same prognosis. This
will be the first of 3-4 times a year over the next year or two, but very positive none the less. Dr Meyer's
the head of ENT at MDACC and a very acclaimed cancer surgeon said he can address Chris's breathing through her nose
challenges with day treatment next visit in April-May while having her next check up. (Radiation has created scar tissue which
has created breathing problems for her.)
We hope you all had a nice and safe holiday season and we feel strongly
that 2008 will be a great year.
You don't know how much strength Chris garners as she reviews her site knowing
her web site has had almost 3,000 hits! Thank you for your words of encouragement and prayers.
Love, Tim
December 19, 2007
Dear
Family and Friends, I want to wish all of you a very Happy Holiday and best wishes for all of you.
Thank
you for supporting me through an amazing year. I can only pray 2008 will bring great and wonderful things
to our life.
My sister and family will be visiting us during the Christmas Holiday
which always brings a ton of brightness to our family. Her family is delightful and brings a lot of laugh to the McEntee,
Lythgoe, Frischknecht families.
This year, I feel even more blessed with the events
that have occurred and where I am today. Three weeks out from radiation and I feel pretty darn good. I
have been “nurse betty” the past week with my two guys. They both contracted Influenza A and have been sick puppies
now going on 6 days. I can only hope that the next week brings light to our cabin. (I think they are paying
me back for the year I’ve put them through and checking my stamina. Well I’m back and I’m ready for them
to knock it off!)
My dad heads in the first week of January for his hip replacement.
This procedure is well over due and we know once he completes this he will be on the slopes and golfing
soon. His quality of life will only get better. He has put off this much need surgery for years and then when I got sick it
was delayed.
So our prayers will be with the Marv man. Also,
prayers to a couple of friends in this loop of cancer whose husband was recently diagnosed and also a good friend of Denise
and Willie’s. Also, my sister in law Jackie as she waits for a liver transplant which we hope will
be early 08. We will keep the faith going for everyone. It’s not easy but the support
makes it bearable. Happy Holidays. With Love, Chris
11/28/2007
The
Finish Line
Well, I knew the end of my “spa"
treatments was coming, but everything ended rather abruptly with my final radiation treatment today. I
received a call last night that the radiation machine had broken and treatment was going to be delayed a day or so.
As you might imagine I couldn’t believe it, and with my nose almost touching the finish line!! About
11:00am today they called me back and informed me the machine was fixed and off to CU I went to finish
the final 33rd treatment.
I want to thank everyone
for your support, love, encouragement and for standing by me and my family through this very tough adventure.
My next steps will be to meet with the radiation doctor and regular oncologist
in early January in CO and will return to MD Anderson in mid January to meet with my surgeon and oncologist there and redo
scans etc. The possibility of doing a one year vaccination to be given every three weeks will be discussed
and any other options at this appointment. At this point, I want to thank my dear
friend Denise for the beautiful gift of this web site. I want to thank all my family, friends and husband
who have stepped up to get me through this process. Your support has been there constantly and a source of stability throughout
my treatment. I continue to hope and pray that my road brings nothing but good health from
here on out. If life changes, I know I have the best support system anyone could wish for.
If it wasn’t for my family and friends like you the finish line would have been impossible. I’m blessed
to have surrounded myself with some of the best souls in the world. Happy Holidays
and I thank you from the bottom of my heart. None of you will ever know how you’ve affected my life! With love, Chris
November 18, 2007
Well, I have
6 more spa treatments left (as Missy calls it) and I will be finishing my radiation the end of November. I’m
not sure I’ve had such anticipation and excitement for a month to come to an end. I officially look like “Rudolph”
and my nose is really sore. At least I’m approaching the right season!
This
last week, I was blessed to reconnect with Mom and Dad’s family of my uncles, aunts and cousins. Unfortunately, my mom
lost her brother bringing us together in Utah for his funeral. We feel that he is in a better place right
now and that his suffering will not have to continue. We will all miss him and pray that everything will
work out for Aunt Joyce (Uncle Don’s wife) along with their children Stacey and Larry. Our thoughts
and prayers are continually with Mom’s other brother Uncle Bob along with Aunt Lois and their kids. There
road as well is become a hard one to travel on and we pray that time will make this better as Uncle Bob encounters a very
tough road ahead.
I had an experience the last couple of days while I was in Utah
that really touched my spirit and soul. Debbie wasn’t able to make it (we missed her) and she had
talked with my cousin Stacey beforehand about the “boys” (my cousins, uncle and dad) giving me a blessing. My
sister works in mysterious ways! I tried to resist it and get out of it as I felt that the focus and remembrance was about
Uncle Don and not me. As the services came to close my cousin Jeff and Larry gave me a blessing.
There was something about their hands on top of my head that gave me a certain calmness and strength. I
wish Tim could have been there.
I was truly
blessed to think most of our family was there and that everyone would take time out of their busy schedule to set aside a
few minutes of prayer for me. Once again, I thank everyone for their prayers from family and friends to new friends that I
don’t even know personally. It means a lot.
Thank you to Stacey for
pulling it together along with Jeff, Larry, Brad, Uncle Bob, Kent, Wes, and Dad and for Debbie instigating it.
The picture on my website is of my five cousins from my Mom’s side
that I have grown up with my whole life. It’s been a long time since we were all able to reconnect
and some of us didn’t recognize each other. What we did recognize and joke about was we weren’t
sitting at the “kids” table anymore! With only a total of seven grandchildren on this side
of our family we always had a special relationship. We truly missed Debbie.
I wish each
of you a blessed and safe Thanksgiving. I have more than my share to be thankful for and for all of you
with your showering of support. Have a nice Turkey day. Love, Chris
November 5th, 2007
Well Chris
is on the back end slide of her radiation treatments. Her nose is starting to get a little raw inside and out, but very little
complaining from my tough little wife. Her pal Denise Harman (Missy) came in from SLC last Tue and stayed through Sunday.
She went to Chris's "spa" treatments together and then went to bkfst. Missy was helping me keep some weight
on Chris. Missy also dressed up as a Firewoman with Devin's Fireman for Halloween (see picture above) and not only went
to school with him in the outfit but also trick or treated with Devin and his best friend Anna. We finished the week with
a couple of days in the mtns. Weather was wonderful and mtns charged us all up for another week of spa treatments. Denise
is a great friend for both of us we are very blessed to have her in our life. (she is also this web site's publisher)
Chris will finish radiation up on Nov 27th and then be due for a long deserved break and lot's of loving.
Please keep her in your thoughts and prayers.
Love Tim
Well,
big thanks to Missy for her continued surprises to my web site. (I told her she needs to do this professionally!)
The song that Denise added is one of my favorite from “Garth Brooks”. This song has
brought many smiles to Devin and me on our driving adventures the past couple years. So hearing this song
when I need inspiration really makes me happy. I hope all of you enjoy it too!
I started my
radiation today. Mom and Dad went with me. Devin had donuts with dad and I made Tim go vs. joining me. So
1 visit down another 32 to go.
I think I see THE light at the end of the
tunnel. I’m just sure of it.
Thanks again to my family and friends for their endless
support. Love, Chris
September 27th 2007
Dear All,
We
returned late last night from yet another trip to MD Anderson in Houston. MDACC was not comfortable making their tumor board
review and prognosis last week off of PET-CT imaging from CU. So they had us come back for another full round of image testing
to make sure that they were making a recommendation from their own very carefully ( I must agree) imaging. The GOOD NEWS is
CHRIS IS CANCER FREE!!!!! That doesn't mean that she might not still have remnants of cancer cells. That will be addressed
with limited radiation to the nose. SO,, my beautiful bride gets to keep her cute little pug nose that I adore so much!
Yesterday was a very heartening and happy day for our family. We want to continue to thank all of you who are supporting
Chris. She will begin radiation in the next week or so and be done in 7-8 weeks. Yeah!!!!!!!!!
Love Tim
September 23, 2007
Hi Family and Friends,
The month of September has brought some surprises. I’ve
been meaning to drop you all a short note to update you. Though I must admit my update is fairly complicated
since everything has been so undetermined at this point, or should I say not set it stone.
The first part of September
caught us all by surprise with the “cardiac arrest”. This as you can imagine set me back a bit. I
feel blessed that I was so close to the hospital (well like in it) or circumstances would have been a lot different. My joke
is the real bummer was they cut off my favorite jeans! You know how girls love their
jeans. They just happened to be my Lucky’ brand jeans so I’m feeling like I got “lucky”
even though my jeans are toast!
Daily I am reminded of the support we are blessed with. So many family and friends giving support
and prayers. Your support has been so generous for me, Tim and our son Devin. This really keeps my spirit
going, more than you will ever know.
Tim and I were at MDA-Houston again this week, and we are heading back once again
this week. I am having my Pet-CT Scan redone at MD Anderson because the clarity of the one from CU wasn’t precise enough
for MDA to make their final recommendation. If my scan shows any sign of live cancer cells then I will have a day surgery
on Thursday to remove what little is left of my original tumor. This will be to remove any bulkage and
“the” sore that I’ve had in my nose forever.
Also, if my nodes in the back of my throat show any signs of
cancer cells then this will also determine my radiation treatment plans which will begin some time in early October.
If the nodes light up I will be doing radiation on my nose and throat. If not, we’re just going for the nose
right now. This will mean 7-8 weeks of treatment. This therapy is really what I’m hoping to occur, because the potential
side effects increase when going for your throat. I will start my radiation in the next 1-3 weeks depending
on if we do the day surgery or not. Surgery delays radiation therapy for another 2 weeks.
So, I’m
blessed with being able to have expert opinions by multiple doctors but it’s also a bit overwhelming to determine all
options at this time. I feel I still need to just stay focus on one piece at a time. Thank you
again for all your support and love.
Love, Chris
More thoughts from sister "Venus":
I think Tim and I are classic Mars/Venus. Tim has done a great job of updating everyone about the details of Chris's most
recent scare. He remembers every detail of her care. Every conversation with every doctor, every medication and the name of
every nurse. There is no one on earth that could love,protect, and get Chris through this maze of decisions and treatments
like Tim is. Tim remembers the mechanics. My heart tends to get stuck in the emotion, which I'd like to share.
I have been trying to process and make sense of everything that happened last week.We were feeling so blessed (still
do) that Chris has had such a great response to the biochemo. After 3 recent rounds, 7 total of chemo, the news that radiation
without surgery might possibly finish off the cancer monster made the sky blue and the sun bright.
Then, last Tuesday a tornado called cardiac arrest descended on Chris's life and sucked us all up with it. It spun us
around until we (including the doctors) were shaken and confused. We felt constant turn your stomach upside down fear, until
the wind finally calmed and we realized no permanent damage was done. Tim said that walking
into the ICU and seeing Chris hooked up to every conceivable monitor was one of the low points in his life. I felt the same
way. When I walked into her room she scared me. She was sick. The kind of sick that makes beads of sweat form on your temples
and is only tolerable if you close your eyes and no one makes a sound. That night Tim let me stay with her. He spent the previous
two nights sleeping in a chair by her bedside.I kept looking at her and in my heart asking God, WHY? After all that her body
has endured,WHY? This blow came out of nowhere. I knew when Tim originally called me that Chris
had been in cardiac arrest, that her heart had stopped. Briefly, I thought. On Friday morning the two doctors that were with
her when it happened stopped by her room and told us how scared they both were. They said it took at least 2-3 minutes to
get her heart started again. Hearing exactly what happened first person brought the reality home to me. I almost lost my sister
Tuesday! I felt the initial panic all over again intensified. Then I felt gratitude for yet another huge blessing. If she
had been anywhere other than in a hospital with a nurse by her side and two M.D.'s on the other side of the door she probably
wouldn't have survived. If she had been home alone or driving a car or anywhere other than where she was, we would have
lost her. Back to the WHY I struggled with. I believe God had a hand in helping her body say
ENOUGH because her spirit simply wouldn't. On Tuesday Chris had no heartbeat. On Friday
she was moved from Intensive Care. On Saturday morning she was released from the hospital. By Saturday night she was in her
cute jeans and high heels, hair and make-up perfect, sitting in a great restaurant having dinner with her husband, son and
sister. I am in " pick your jaw up off the floor" awe of my baby sister! We
have every reason to believe that Chris will completely slay the cancer monster . It's a huge miracle. A miracle that
Heavenly Father, spurred on by all the prayers of those who love and care about her is creating. Please keep praying. I know
without any doubt that we are, praying her better. Love, Debbie
September 8th, 2007 12pm
Well we broke Chris out about an hour ago. We had scheduled a final 6am EKG and blood workup with cardiologist last
night so she could get out before the cardiologist made his rounds this morning; then he didn't release her around 8am
as promised. At 10:15 Chris basically told the nurse that she was leaving. At 10:30 the cardiologist showed up and
released Chris. The tests came back OK and she is now home, or should I say going with her son and sister to get some sunshine!!
Thanks for all your thoughts and prayers.
Love Tim
September 7, 2007 4pm
Well it has been a wild couple of days. After many, many tests and several perplexed cardiologist they finally figured
out that the anti nausea drugs that Chris has been prescribed with her treatments, and after them are causing the occasional
irregular heart beat. She seems to have had an adverse reaction over time, and it appears this was the culprit for her cardiac
arrest on Tue. So they removed them, and also added a beta blocker to her daily regiment. It appears to be doing the trick
and we almost got out (yes it does feel like breaking out of prison at times) today, but they wanted her levels on one of
her tests to decrease slightly to ensure no episode could occur when she is home. She has been given excellent care and the
nurses continue to be truly amazing!! Now we have new friends in the ER and the Intensive Care units as well at CU!! :) So
keep your fingers crossed and we will keep you posted.
Tim
September 6, 2007 2pm
Ok-where do
I start? Chris and I attended a radiology consult together on Tue afternoon. It was a fairly intense consult. After the consult
the radiology team had scheduled to do Chris's radiation treatment planning scans. They basically make a mask that covers
your face and then bolt you down for scans and subsequent therapies. Well right after she finished this somewhat overwheling
ordeal, she was still on the table when she went into what they thought was a siezure and cardiac arrest. Chris
was given CPR and they used paddles to get her heart beat back into sync, this only took a few minutes Then rushed
her to the ER on the other side of hospital. I had gone back to work after the consult and was informed right after they resuscitated
her and was back at hospital within 20 minutes.
Now for the good news, all tests have come back negative from
a brain MRI and chest CT to echo cardiogram of her heart. So it appears that her heart is not damaged and that she does
not have any tumors or lesions that could be causing this. It was not a heart attack, no enzymes were evident that would mark
a heart attack. So they/we are perplexed. It appears we will be going from ICU to a regular room later today to be watched
over for another day or so. Sorry about delay in updating everyone, but just didn't have a lot to report on what was happening.
She is and has been in pretty good spirits and fully awake and talking. I will keep you all posted as we try and
figure this out.
Tim
September 2, 2007 11am
I am very happy to report that
Chris is recovering quickly from this last round. Her spirits are good and Devin is thrilled to have his Mom home. Thanks for
all your support. I know Chris looks at this site several times a day, and garners some of her strength from it!!
Love Tim
August 31, 2007 8pm
I am happy to report Chris is home in her little bed.
She did extremely well today with Erin supervising her departure.
Thanks for all your support.
Love Tim
August 30th 5pm 2007
Another beautiful night and day for Chris. This morning Erin gave her
the dreaded shower (dreaded by me) and Chris slept most of the day. Her parents were here a good part of the day along
with Martia visiting. Her commrade in arms Sandy came by also to check on her last night. We just finished what
we hope is her last (ever) chemo drug. She will get some bio drugs in am tomorrow and then we wean her off the dopamine and
take our Princess home to her awaiting son by dinner time tomorrow. Erin has been a great help. Not sure why I didn't
bring the surgical/ER nurse in before round 7!? duh!
We appreciate all your thoughts and prayers. Keep them up
and I will keep you posted.
Love Tim
August 29th 8am 2007
Chris did beautifully
yesterday. She literally slept soundly the entire day. Erin spent time with her later in the day and Chris kicked her
out about 9pm as she dosed off again. She had a good night but they had to push fluids due to her typically low blood pressure.
Our little trooper has a Zen like ability to take this beating and sleep through it! Let's hope it continues through week.
Her last chemo drop is tomorrow.,,, Hopefully forever. we'll have her home for the long weekend by 3-4pm on Friday.
I'll keep you posted.
Love Tim
August 28th, 9am 2007
Well
Chris is resting well after completing day 1 of what we hope is her last bio-chemo round. She is somewhat of a celebrity around
here due to her response and numerous visits. The nurses tried a new anti nausea drug yesterday that seemed to help with the
more difficult first round. Her personal nurse (and lifelong friend) Erin cared for her all night and she only got sick a
couple of times. Erin introduced Sprite into Chris's rigid regimen of no food or anything and it seemed to help. (Helps
having your own seasoned nurse!!!!:)
We will keep you posted on how she does over the next few days.
Love Tim
August 26th, 2007
Dear Family and Friends,
Thank you for
your love and support. As I head into chemo tomorrow for my 5 day stay, I pray it goes quickly. I couldn't ask for
better news as this point. I truly feel blessed that things are progressing in such a positive manner. I wouldn't
be where I am today if it wasn't for my strong support system. My special thanks to Erin for jumping in at the last
minute to help my family with this last round.
Tim says that my medical "high maintenance" should
count for dog years with me. Ummm... not sure on that one!
Please keep me in your prayers. Love, Chris
August 26th, 2007
I am happy to report more good news. Chris's latest scans were reviewed at MD Anderson's weekly tumor board
and the recommendation back from MDACC and previously CU Medical Center was to proceed with what we hope is her last round
of chemo for now and she will then move to low a dose radiation therapy in the next few weeks. Radial therapy is performed
as an out patient and will take about an hour a day for 4-5 weeks. We are being led to believe that surgery is not required
due to the success of Chris's response to chemo therapy. Recent PET-CT scans not only show the tumor has shrunk
dramatically but it no longer shows up "hot" on the PET scan. Meaning that if there are remnants of
the cancer left they are microscopic and do not read on the PET imaging. Our little stud is ready for this last round
and has kept her spirits high, although she is getting a little short with my sense of humor!
We have Chris's
good friend Erin coming in from Utah. Erin is a nurse at LDS so I will be taking notes from her on this last round. All
kidding aside I think we will be able to take extra care of her. Although I think she will miss her sister Deb and Missy though!
Me too!!!
Keep us in your prayers. Love Tim
August 20th, 2007
Sorry
for such a long delay in updates, but really have not had much to report. Chris got scanned late last week for a planned follow
up apt for today. Then we get a call from our oncologist's nurse on Friday afternoon somewhat ecstatic and asked
for Chris to call her. Well, they wanted to let us know before we went up to the mtns for the weekend and prior to our
planned apt for Monday that the PET-CT scan came back very positive. So today we learned after they received the radiologist
report that the tumor had shrunk dramatically and that her cancer no longer shows up in the PET scan of her body or even the
tumor or "source" of the melanoma in her nose. So that means we have eradicated the massing of Cancer, but
we know we did that 3 years ago and it came back at the source. So,,,,,, what does that all mean. Well we will confer with
the team of Dr's we have involved at MD Anderson this week, but the CU teams recommendation at this point is one more
round of chemo next week and then do a very specific radiation therapy to eradicate any cells that are left at the microscopic
level at the sources in her nose. If this protocol is pursued and agreed upon by MD Anderson Chris might be able
to avert the dreaded nose surgery. Too early to be sure, we really want to make sure we have consensus between the two top
teams of Dr's to include oncologist, surgical oncologist and radial oncologists at both MD Anderson and CU. As you can
imagine this news has us cautiously optimistic that Chris could be through her therapies in 8 weeks.
Chris's
niece Brianna has been with us for the past 4 weeks and has been a tremendous help with Devin and caring for Chris after her
last treatment. Of course we had Denise come in for that round too so we've had lot's of support. I also
want to thank you all for providing so much support to Chris through this web site and letters/calls. I know it means the
world to both of us.
This week we will confer with our Dr's and we do have Chris scheduledfor what we
hope is her last bio chemo round starting next Monday the 27th.
We'll keep you posted.
Love Tim
August 14, 2007 - Chris
Well, everyone keeps asking for an update and things
are really quiet. I will be going in the first of next week to review a current Pet CT Scan with my doctor.
After that it will be sent on to MDA to get their opinion as well. As this point, it should lay the ground work of which
way we are heading. Not too sure at this point where we are going! I really can't get too ahead
of myself or it brings on stress and questions that I can't begin to ponder or answer yet. It's the one
day at a time theory. Focusing on each day and not getting ahead of myself has become more important than ever. Maybe I need
a little more meditation or yoga in my life! So one of us will update you in the next week or so on any changes that
maybe occurring. Thanks again to my family and friends for their ''check in's" and support through
this web site. It's truly a blessing for me, my family and friends. Reading one line on a dreary
day is the inspiration I need to pull it together. Just don't be confused. I think sometimes it's harder
for family and friends than the patients. It's not easy been one of them and being on the receiving end for all
the ones I love. This is been the hardest thing for me is watching the disappointment and stress through my spouse,
family and friends endure. Of course everyone does an exceptional job at holding it together in front of me. Missy
left Sunday and boy we will miss her. She continues to be an inspiration and never stops giving :) Keep the faith. Love, Chris
Sunday Aug 5th (7:30 AM)
Well it is Sunday morning
and my little friend is home where she belongs. She had a little set back yesterday with being discharged as her blood
pressure would not stabilize for her release. Fortunately she had a great nurse that helped her through and was finally
released after 5PM. Needless to say, the final hours she was dressed (including shoes and socks) sitting on edge of
bed impatiently waiting. It is so impressive to me what a kind person she is. She never fails to greet and thank
everyone who enters her room, even when they are waking her (every 15 mins) or there to inflict some kind of pain. Last night she tucked Devin in for the night and then later was busted doing laundry. She is my Mrs. Incredible!
And all I can say about Tim is that he has MANY sets of wings waiting for him in heaven. He is my hero. Love to all Missy (Denise Harman)
August 4, 2007 12:30pm
(MDT)
Chris just finished her last bio med and will now be weaned off her dopamine and dashing home.....Ok dashing
might be a little much. Hope to have her home in a couple of hours. She has her Mom and pal Missy here with
us now to keep her smiling throughout final hours.
Thanks for all your thoughts and prayers. Round
two is pretty much in the can!
thanks Tim
August 3, 2007
Well Chris
did very well with her third round yesterday and will begin her fourth round in about an hour. Her fifth and final
round tomorrow is a lighter round of two of the five drugs she's been taking. She will finish that by noon tomorrow and
then we begin the process to get her home. Hope to have her home by 4pm tomorrow.
Marita looked out for Chris
this morning and I know Chris appreciates that and the visit from Diane. Her pal Missy will be in late today and will spend
some time with Chris tonight and help us take care of her next week. As I've said before it continues to amaze me how
many special friends Chris has in this world.
We'll keep you posted.
thanks Tim
August 2, 2007
Chris's 2nd round went well and she had a good night. Blood-pressure still a concern. Instead
of increasing her dopamine I offered to the nurse to talk to her about things I knew would piss her off, but they said
that wasn't medically sound!?
Our good friend David Clayton took the infamous morning shift change. I got to
wake up my son and have bkfst with him. Even squeezed in a few hours of work when Chris's parents took over watching over
our girl through the morning and lunch. Much appreciated.
Chris will begin her 3rd round in next hour or so. I'll
keep you posted.
Tim
August 1, 2007
Chris had a bit of a tough night. But
that's pretty common with first day of treatment. She takes one chemo drug she just gets the first round. She slept well
after overcoming her nausea a little after midnight. She had a great morning. blood pressure is a bit on edge,
but we are watching closely. Her next round will begin about 4pm today. I'll keep you posted.
Love Tim
July 31, 2007 9:30pm
Well the day finished better than it started. We got here at 8am as usual for the
first part of her treatment and we find out they don't have a room available. Guess I forgot to call for an early check
in. Long and short is we got into our room at noon, and just finished her first round. We had an especially good and seasosned nurse
that got Chris's nausea and pain immediately under control. So I am happy to report at this time that she reacted
to her first treatment beautifully.
Each course of treatments get more difficult for her phyically and mentally.
This one more than any previous treatments.
Will keep you posted. Keep the prayers up.
Love Tim
July 30th, 2007
Chris and I had her follow up today to review the CT scan of
her tumor following her first round of bio-chemo. The radiologist and oncologist were both very positive about what
appears to be a "killing off" of the tumor or what they call "necrosis". This is what we had hoped for,
that is that Chris would respond to the treatment once again. They very seldom take CT scans after only the first round since
the protocol of 4+ rounds is based on the tumor being eradicated a portion at a time!
So....next step is she begins
her second treatment tomorrow morning and if all goes well we will be home on Sat. We have Chris's niece Brianna helping
out here with Devin for several weeks along with her good friend Denise Harman coming to town on Friday to help
nurse her back after treatment. We will miss Chris's sister Debbie's support this round, but she was informed
she had to care for her own family this round. (An edict by her bossy little sister) We look forward to her return! I want
to thank all of her/our friends and our families for there continued inspirational support.
I'll try and
keep you posted over the next few days.
Love Tim
July 23, 2007
To my dear
Family and Friends, I don’t think I warrant my own web site! All your thoughts have really been
comforting and a reality check for me this past week or so. I’ve been reading these emails in chunks
and sometimes I can read only a few because I feel so lucky and blessed and get a little choked up.
I’m
thinking the second go around I still need your thoughts and prayers and this road seems very curvy at times. As
I’ve been told this isn’t my “first rodeo” so I think I’m getting pretty good at this “ugly
monster” (as Deb would say). This process or at least hitting this straight on seems to be the best
approach.
Thank you to my “Tamale” for taking the time to make this web site for me. Denise,
you are continually there for me and my family and it never stops. Thank you and I love you!
You truly emanate true friendship.
As the weeks have gone on I’ve slowly started to get behind on thank yous,
emails, and getting back to people. Thank yous will be coming but they might be a few months late.
This web site has really been a blessing for me.
I really don’t have anywhere to start because I feel I will forever be in
debt to my family and friends for helping me through the “bend in the road” again. All I can contribute this
again to is apparently I also was standing in a couple of wrong lines in heaven that only have a few members in their club!
To Tim thank
you for all you continue support, love, doctors appts etc. I think you’ve almost earned your PHD.
Not what you wanted, I know!
My mom and dad, sissie, family, old and new friends…. Thank you for all the love
and support you give me. I couldn’t do it without all of you. Debbie, a special thank
you for up rooting your life again so that I might get a jump start on tackling this project. I know how this must affect
your life and family. You are my second mother and sissy and I love you more than you know.
I will keep trying my hardest and I will keep accepting your prayers and love. It really
is what is helping me cope right now.
Love to all of you, Thank you, Chris
Latest developments Monday July 16th Notes from Chris's bedside, Sisters
thoughts:
I feel blessed that Chris & Tim have allowed me to be here with them this
week. The first thing that hit me when I saw Chris is something I've watched all my life,my little sisters strength.
Tim is her soulmate in that way as well as so many other ways. So, the environment in the McEntee house the night before treatment
was one of determination,optimism,and humor; mixed with the expected emotions of fear,worry, and why? Chris didn't verbalize
it but I know that walking into the hospital Tuesday morning must have felt like willingly going for a flogging. The monster called
cancer is bigger and uglier this time.After meeting with numerous doctors, Chris is aware of how ugly he is and how long and
hard the fight to kill the monster might be. But, with her strength, her love for and from her husband and little boy,and
all of our prayers, she will slay the monster and permanently send it packing. Even as she laid
in her hospital bed,every cell in her body being tortured with extremely potent chemo drugs,the Chris that we all know and
love didn't miss a beat.I can't count how many times she turned to me and muttered too weak to open her eyes things
like:"I'm sorry I'm not much fun right now" How's Devin? Nurse, I think my sister needs a
nap could you please get her a pillow? How's Devin? Deb, when you go home tonight make sure you eat I filled
the fridge with lots of food." "There are lots of books and magazines on my nightstand for you." How's
Devin? Don't come down too early I want you to get some sleep." I'm worried about you and Tim,have you guys eaten? How
are Mom and Dad?" Even in a state that every breath was uncomfortable it seemed all that was on her mind was making sure
that everyone else was comfortable and happy. Just like always..... Another part of Chris that
just can't be kept down is the Glamour Girl in her. She went off to the hospital with a huge bag of new pajamas
and sweats. She said that if bed was where she was going to be the coming weeks, she was going to look good there. Even though
just sitting up took a huge effort, she still insisted on a shower,clean pajamas and clean sheets each day. As I put clean
socks on her perfectly pedicured feet and watched her apply lip-gloss even though her eyes were closed, I smiled.
Devin has done well this week. He misses his Mom but Chris and Tim have assembled an awesome team of people to help care for,
teach and play with him.Nothing is as good as Mom though. Tim and Chris are amazing parents. It's been fun for Aunt Debbie
to have some time with my adorable nephew. As I read through the guest-book all the expressions
of love and faith brought tears to my eyes. I know everyones support will mean the world to Chris in the coming months.
Chris told me that her oncologist told her how fortunate she is to have such a great circle of family and friends to
support her. He said that many patients don't win their battle largely because they lack a strong support system. So,
thank you for your continued prayers. I know with all my heart that if we all continue to pray on her behalf, that we
will pray her better.
Love to each of you, Debbie
Sat July 14th
10pm Our Little Chris is home. She did better than any of her previous rounds, but I'm partial. Now we
just have to keep the gnarly nausea away and feed her! Keep the prayers up and positive thoughts. Won't know anything
for a week or so. Sat July 14th 9am Chris had a great night. For the first time since she's had
these therapies (3 years ago too) we have not had to max out her dopamine over the 5 days to keep her blood
pressure up. So all is good. We will turn off last bio drug at noon and then work on getting her out of here. Of course
she is already talking about how bad she wants a shower!! You know our little Chris!!! Hope to have her on her way
home by dinnertime! Friday the 13th 5pm Chris is just finishing up her last day of chemo and will
only have her final 24 hours of a bio drug that is an immune enhancer to finish off her first round of bio-chemo. Last
night we battled her blood pressure a little to keep it up so they could continue the process. She did great after that. She
slept most of today, and is already starting to work what we call the "closing nurse"!! This is person who will
help us finish up tomorrow (Saturday) and enable us to take Chris home. Probably will be 7-8pm before we get home. Will
be great to get Chris back in her own home and bed. Devin can't wait to see his Mom. I know she
will be looking forward to seeing this web site and your messages. I want to thank the Tamale's for putting it together.
Especially the Techo Tamale herself Denise Harman. thanks Tim
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